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My name is Charlie and live in the UK. I started You, Me and HD, after the diagnosis of my Dad in March 2019. My dad found out he had Huntington's Disease two days before I gave birth to my first child and his first grandchild. 

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You, Me and HD isn't just here to tell my story, I hope through speaking out will help me connect to others suffering as a result of HD. I hope this educates people and helps them look beyond the facts in font in front of them. I want them to see the faces and the stories of our experiences living with this rare disease. I also want a safe place anyone can come to and be heard especially those having to make the choice to be tested and coming to terms with their results and indeed their future. 

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DISCLAIMER - All fact based knowledge is source only through the links found within the 'About HD' links unless stated. 

 

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Our Genetic Testing Journey was filmed by the
BBC with Stacey Dooley

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